Ehlers Danlos Syndrome – Mast Cell Activation syndrome (MCAS)

Image of Mast Cells

I thought at one point that i had this condition but it turns out that the MGUS I have is very similar to this condition. The UK calls this condition mastocytosis. However, MCAS is a sub type of mastocytosis. So this means it is a blood plasma condition.

In 2020/2021 i attended a webinar for this condition and discovered that there is an IgE plasma disorder associated with MCAS. Dr Anne Maitland is the foremost knowledgeable person for all things MCAS and was the lead presenter in this webinar available on this website.

I have had comments from people with this condition that they are allergic to cannabis so it now has me wondering whether people with this condition would have an over active endocannabinoid system (ECS) instead of an underactive one like me. I did bring this fact to the attention of Professor Mike Barnes in a different webinar so i am hoping that there is some research going on for this condition. Although i think the UK has lost it’s way with science recently.

I hope this post will help people who may be struggling to find answers for their medical needs. But since i am not a doctor and don’t have this condition there is not much else i can say that probably hasn’t already been said. So i have no authority to comment. If you have this condition and would like to add to this post then please leave a comment. Thank you.

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