Category: Ehlers Danlos Syndrome
-
The Disability Union
I joined The Disability Union about 10 months ago. As an unwaged disabled person it is £49.99 for an annual subscription. Here’s what the union had to say in their first communication after joining. Welcome to the movement Hi Philippa, Thank you so much for becoming a member of The Disability Union! We’re thrilled to […]
-
Vaping with Philippa – Strawberry Glue
The main picture on this post is a picture of a nug of Strawberry Glue accquired from Leafly. Thank you leafly love the website. This is what Hytiva has to say about Strawberry Glue. This website has a different terrpene profile but it does look like this page also has the whole lineage of this […]
-
The Skin and Cannabis
It looks like there is still an awful lot of research to do when it comes to skin conditions being treated with cannabis. It looks like CBD helps with acne and I have read somewhere that THC can act very much like testosterone and cause acne which is probably the reason that I am currently […]
-
Ehlers Danlos Syndrome, Autism and ADHD.
This is not something i have studied inn great detail but i have wondered whether I am on the spectrum of both these conditions. I don’t suppose i will ever know now that the NHS is all but privatised. It’s not like i could go for a test anyway i think the waiting list is […]
-
Ehlers Danlos Syndrome – Mast Cell Activation syndrome (MCAS)
I thought at one point that i had this condition but it turns out that the MGUS I have is very similar to this condition. The UK calls this condition mastocytosis. However, MCAS is a sub type of mastocytosis. So this means it is a blood plasma condition. In 2020/2021 i attended a webinar for […]
-
EDS & Postural Orthostatic Taccycardia Syndrome (POTS)
I have had testing for this condition i have had the symptoms of this condition since i was a child but the results came back negative. So now of course i’m wondering if my cannabis use (which i wasn’t open about at the time of testing) altered the results or whether i have the condition […]
-
EDS Awareness – Gastroperesis
My friend Jenny Tate has this to say about gastroperesis. Taken from her Facebook page with permission. Jenny also has a music blog called Rock Queen Reviews. *Ehlers Danlos Syndrome Awareness Month post* TMI WARNING. Gastro stuff. This isn’t stuff I’d usually post on here, as it’s obviously embarasssing, but in the cause of awareness […]
-
Diary 2 back on the Noidecs T10:C15
I have no idea where the first part of this diary has gone but i have my suspisions. I’m afraid it’s something else that I have to classifly. But here is what remains of my diary. Day 24 diary – Tuesday 24 may 2022 Woke up not feeling great and in lots of pain because […]
-
May Ehlers Danlos Sydrome Awareness Month
The main picture above is a picture showing how to test for Ehlers Danlos syndrome, hypermobile type. There is also the Hypermobility Syndromes Association 1 May 2022 – marks the start of Ehlers Danlos Syndrome (EDS) Awareness month. EDS is a very complicated condition and has many comorbidities meaning it can be the cause of […]
Philippa Fleming Activist 